SAY IT WITH ME – WE WANT ACTION NOT #AWARENESS

Last April I wrote this… AUTISM REALITIES

It saddens me to confirm, progress is not always a reality in many households.

Parents are being told to light it up blue, to pay for walks or to use a puzzle piece to show awareness towards autism.

These meaningless symbols do not represent actual needs. These meaningless symbols do not create opportunity to enjoy quality of life. These meaningless symbols keep parents in a circle of false hope as autism continues to challenge everyone’s existence.

Autism is not easy. Autism is complicated. Not everyone understands autism.

Economics, politics, science, philosophy and all the forces of the universe have us in this conundrum and we the parents do what we can to the best of our abilities.

My thoughts this year:

We want action NOT #awareness
We need #mediainclusion
We need real options, steps to follow to seek quality of life…

Don’t dare highlight blue lights in April when…

A parent tried to kill her child with #autism
A teacher verbally abuses a student
School districts violate federal law
Law enforcement is not 100% trained
Bus drivers and teacher assistants rape girls
30% of marriages end separated or divorced
Moms have #PTSD and #Depression due to lack of support from doctors/therapists/academia
Academia is behind in thought process and suggestions how to live/handle/manage the diagnosis

Doctors diagnosing still tell parents there is no hope, this is how your child is going to be and will end up in an institution
Ignorance and fear reign rampant

Insurance companies limit or do not cover the wide array of therapies that can help achieve quality of life

Teachers to be do not receive appropriate training prior to working with our kids!

Individuals with severe autism are poorly served by the organizations claiming to support their needs
Poverty reduces the possibility to seek quality of life – parents are not given the opportunity to learn about self-entrepeneurship or become acquainted with their rights
Per the CDC – now, 1 in 36 kids have developmental disabilities
and tons more…

Talk to my daughter and I, we have tons more to share… We do not demand a perfect world. We simply want things to improve and we are ready and willing to be a part of the process.

 

THE EYE (12/2017) by Thomais V. Moshopoulos

This creation is the result of a question asked to my daughter – now that she can talk —

I asked: “What do you see?”

She answered: “I used to see rainbows”

I asked: “Do you still see rainbows?”

She answered: “Not anymore”

I asked her to draw what she saw and this is the result.

 

Read:  THOMAIS MEDIA CHALLENGE

Published by

friendsautism17

A bit about me: Yadira V. Calderon has been eating, breathing, sleeping, challenging and accepting autism for the past five years. She is a dedicated warrior, advocate, radio talk show host, director of short films and author of the soon to be published – Autism: The Happy Kingdom. She holds a M.A. International Relations and Diplomacy, speaks three languages and has lived in six countries, having traveled to another twenty-seven. Her friends know she is determined, persistent, positive, creative, open-minded and realistic, she believes these attributes prepared her to become the mother of eight year-old Thomais. Yadira has worked as Editor for Trade Publications – Meat and Baking industries; Logistics- Cement Industry; Part-time Professor in China; and Teacher Assistant in 3 middle schools – ESE classrooms. Presently, she provides support to an adult with special needs and works in a retail store.

One thought on “SAY IT WITH ME – WE WANT ACTION NOT #AWARENESS”

  1. The ignorance of people amaze me!! One of my biggest challenges is going in public with my son who is 8 but he acts sometimes like a 2 years old. We need more tools we need good trainings for our teachers in order to have a better environment for our kiddos in our schools and YES definitely no more awareness instead ACCION.

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