Posted on

Learning about Raffles!

Greatest experience ever…  another one!

To see my daughter being a kid and learning the big lessons in life

Enjoy her creation, words, illustrations and expression of emotions…

Video here: Raffles Really Really Stink by Thomais

Individuals in the spectrum are very literal

Explaining the concept of a raffle takes many efforts, subtleties and the classic be ready for the unexpected survival skill we parents – diagnosis or not – utilize quite efficiently…

At 9yrs old this became a fun experience, drawing it made it easier to handle…
Bottom line: Emotions shared and unwillingly comprehending she did not win and she has to deal with it…
A big plus… no behavior crisis, no torture for no one…
We continue… Enjoy!

Posted on

Proud of me!

My daughter is 9 years old.

My daughter has autism.

My daughter is proud of who she is.

As a parent I could not be more at peace, relieved, proud and accomplished.

This sentiment, being aware of it, is instilled at home. My day as a parent could have been as challenging as it can be, as complicated as it could get… yet, I’ll always make the choice to guarantee my daughter will hear from me, I am proud of her.

The source of pride is love which supercedes all confrontations with reality I may face. Yes, that unconditional love parenting promotes.

The source of pride is prioritizing what we are and how my actions will influence and/or impress my daughter.

I invite every parent to put aside – for a minute – all worries, source of pressure, frustrations we all face as we raise or care for our child/adult with a diagnosis. Say it with my daughter, say it with me – I am proud of me.

Do not miss the opportunity to communicate this powerful idea, thought with your loved ones.

Let me know how it goes!

 

Posted on

Hollywood can’t handle talent with a diagnosis!

Now I understand why Hollywood, Netflix, HBO, ABC, CBS, NBC, Disney, Nickelodeon, Broadway, etc. will not hire actors with a diagnosis, with obvious or mild challenges.

Video: Trolls and Friends  The Musical, Dunedin Community Center, FL

In an attempt to entertain, the writing may reflect some of the realities faced by an individual who is considered to have limitations. But a trained actor is the one hired to perform the role of someone they have no knowledge of, they cannot relate to, many times, they don’t even respect who they are. This trained actor pretends to have a diagnosis and pretends to make others laugh or cry. Decent writing and marketing may save the show. This is pathetic, ridiculous and short sighted.

Continue reading Hollywood can’t handle talent with a diagnosis!

Posted on

TV report – Alternative Medicine

Conversation about alternative medicine and its benefits.

FL lifted the ban on medicinal cannabis and a dispensary in St Pete FL opened.  I was interviewed to discuss our reality — we can’t afford the product, even though we’d benefit immensely from it.

As a parent – I’d have to pay for a consult, then a permit of sorts, plus the product.

Video: Reporter – Beatriz Pares – InfoMas, Tampa FL (July 2017). Subtitled.

Continue reading TV report – Alternative Medicine

Posted on

AUTISM REALITIES

We know all about autism awareness.

We want action. Life with autism is 365 days, 24/7…

These are various posts  I shared in social media. They reflect the reality of many families. For many it’s been the same or worse for 10+ years. The media rarely reports on these matters.

Do share!

Continue reading AUTISM REALITIES

Posted on

WEDU PBS Autism Broadcast: Yadira Calderon Is A Featured Guest!

I thank everyone who is making these opportunities possible.

Town Hall — my intervention, segments from Autism and Employability parent panel —   min. 23:28 – 29:04 and min. 48:38 – 49:14

Webcast – min. 4:04 – 4:39

 

Posted on

About Sesame Street, Inclusion, Reality

The media is overwhelmed, reacting to the inclusion of a muppet with autism. If it only was that easy in real life…

@Ellen DeGeneres tweet is reflective of the vague words used by most media outlets – –  People make people feel included I dare to add, not a muppet!

The effort and expense used to create this new character is immense. Many fortunate individuals are a part of this project. I am very glad parents of individuals in the spectrum contributed.

My issue with the new characters lies with the words shared by my daughter in the spectrum. As soon as she saw the picture (I swear I had not made any comment to her or she had not heard me say a thing about it) she says:

 “Ridiculous! How can a frog have autism?”

She insists:  “Autism is not scary!” And reminds me she wants her own reality shown!

Continue reading About Sesame Street, Inclusion, Reality

Posted on

Say it with me: We the Parents Make it Happen!

Last January 19, 2017 at the Palm Harbor Library (FL) more than 35 families from Tampa Bay and beyond responded and confirmed the need to hold meetings with content created by, led and with meaning to parents.

Reality is, all families would have benefitted from the messages shared. The universal message of parental empowerment, commitment, dedication, restlessness applies to us all.

Continue reading Say it with me: We the Parents Make it Happen!