Now I understand why Hollywood, Netflix, HBO, ABC, CBS, NBC, Disney, Nickelodeon, Broadway, etc. will not hire actors with a diagnosis, with obvious or mild challenges.
Video: Trolls and Friends The Musical, Dunedin Community Center, FL
In an attempt to entertain, the writing may reflect some of the realities faced by an individual who is considered to have limitations. But a trained actor is the one hired to perform the role of someone they have no knowledge of, they cannot relate to, many times, they don’t even respect who they are. This trained actor pretends to have a diagnosis and pretends to make others laugh or cry. Decent writing and marketing may save the show. This is pathetic, ridiculous and short sighted.
Continue reading Hollywood can’t handle talent with a diagnosis!
Conversation about alternative medicine and its benefits.
FL lifted the ban on medicinal cannabis and a dispensary in St Pete FL opened. I was interviewed to discuss our reality — we can’t afford the product, even though we’d benefit immensely from it.
As a parent – I’d have to pay for a consult, then a permit of sorts, plus the product.
Video: Reporter – Beatriz Pares – InfoMas, Tampa FL (July 2017). Subtitled.
Continue reading TV report – Alternative Medicine
Concepts like faith, politics, emotions, behavior can be interpreted in so many ways… An individual in the spectrum can wait months before they can express the meaning of the ideas/messages received.
Continue reading Art, Autism, Affirmation…
We know all about autism awareness.
We want action. Life with autism is 365 days, 24/7…
These are various posts I shared in social media. They reflect the reality of many families. For many it’s been the same or worse for 10+ years. The media rarely reports on these matters.
Continue reading AUTISM REALITIES
I thank everyone who is making these opportunities possible.
Town Hall — my intervention, segments from Autism and Employability parent panel — min. 23:28 – 29:04 and min. 48:38 – 49:14
Webcast – min. 4:04 – 4:39
The media is overwhelmed, reacting to the inclusion of a muppet with autism. If it only was that easy in real life…
@Ellen DeGeneres tweet is reflective of the vague words used by most media outlets – – People make people feel included I dare to add, not a muppet!
The effort and expense used to create this new character is immense. Many fortunate individuals are a part of this project. I am very glad parents of individuals in the spectrum contributed.
My issue with the new characters lies with the words shared by my daughter in the spectrum. As soon as she saw the picture (I swear I had not made any comment to her or she had not heard me say a thing about it) she says:
“Ridiculous! How can a frog have autism?”
She insists: “Autism is not scary!” And reminds me she wants her own reality shown!
Last January 19, 2017 at the Palm Harbor Library (FL) more than 35 families from Tampa Bay and beyond responded and confirmed the need to hold meetings with content created by, led and with meaning to parents.
Reality is, all families would have benefitted from the messages shared. The universal message of parental empowerment, commitment, dedication, restlessness applies to us all.
Continue reading Say it with me: We the Parents Make it Happen!
Yes, at 8/9 years old doing volunteer work is extremely important.
But wait, at this age kids should be in parks, riding bikes, some may say playing computer games is part of being a kid these days. But T. and her friend S. were taken to the Thrift Store, part of the Homeless Empowerment Program in Clearwater.
T. and S. know each other. They play great together. They leave each other alone. They drive each other crazy. They are kids learning about life. They are kids and in most instances, they’d be regarded as one of the bunch. It is wonderful and as parents, we are so proud.
The kids wondered why did we have to volunteer. We explained in simple terms – We want to give back and be thankful for everything that is good in our lives because others are not as fortunate. Explanation accepted.
While volunteering, reality is more than obvious and we moms start realizing that 10 years from now our kids would not survive 5-10 min in any job. We were not there to play and personal interests confirmed how much work was to be done (sorting clothes and placing them on hangers). Once the personal interests were no longer thrilling and the realization that actual work is expected, this is when our duty as parents became really fun. Looking for entertaining explanations to keep them focused was a live rendition of every reason we’ve heard moms say for hundreds of years. Let’s sort by color, by specific item, do this number of items and we’ll do this, we have so many minutes left, that’s enough I need you here right now. And you can imagine the rest.
Continue reading Volunteer work in the Happy Kingdom!
As a parent, I realize I must constantly open more doors to assist the process of understanding what life can be about… With a diagnosis like autism, on any given day, it can be so challenging to help your offspring understand the meaning of different situations we can witness. Today was a breeze. Today was all about being connected and wanting to be a part of the world.
Our presence at the Women’s March in St. Pete FL was so enriching, exciting.
Our sign said:
REMEMBER: AUTISM IS NOT SCARY!
WE NEED MORE +MEDIA COVERAGE
My daughter was all ready to ask for pictures, to raise her megaphone voice and say it – Autism is not scary!
Continue reading #Autismisnotscary at the Women’s March!