LinkedIn celebrated its 15th anniversary… Congrats…
They requested people write what they dreamed, thought about when they were 15.
I shared these thoughts!
My daughter wants to travel. She wishes to discover the world. She says all the time, you went to China and you did not take me… not fair!!
We have read posts about families raising children, teens and adults on the autism spectrum who have succeeded planning trips. Yes, even with autism on board they were capable of enjoying a vacation. Above all, not allowing the diagnosis control the dynamics.
Here is our effort. We must share what we are learning and enjoying.
I am aware not everyone can do what we do, how we do it. The purpose here is not to compare since we have something to learn from all of you, I firmly believe that. The purpose is to share how we accept the awesome and the challenges of our day to day. Above all, how we seek quality of life.
Enjoy the latest posts…
What are the future. dream locations she wishes to visit? Read this: Art Inspires the Ambassador
She loves to draw. She is very original. She has not been to these places. She may have seen pictures of these places. It is her interpretation.
Questions, suggestions? Email: firstname.lastname@example.org
Thomais has autism. She can now speak – after a massive regression in Dec. 2010.
As time passes, her prowess with language and body expressions is obvious and beyond enjoyable. At the same time, her message is clear, concise and beyond real.
Thomais wants to be acknowledged, accepted, understood, respected – she wants to belong.#Autism can present challenges. The rest of the world needs to hear from those living it, to better understand what it can be about.Find out more about Thomais here: www.autismhappykingdom.com#twominutewonderclip
Posted by Autism: The Happy Kingdom on Thursday, April 12, 2018
She wants to be acknowledged, accepted, understood, respected – she wants to belong. #Autism can present challenges. The rest of the world needs to hear from those living it, to better understand what it can be about.
This was Thomais’ reality in 2012… behavior crisis that could last 2 hours… https://www.youtube.com/watch?v=vfcRx… It is no longer the case… Now we celebrate her!
Find out more about Thomais here: www.autismhappykingdom.com
NOTE: I am aware not every family can have their child communicate the way Thomais does. We have been there. We survived the not knowing or understanding. May Thomais’s words help those around you understand what your child/teen/adult could be experiencing.
Last April I wrote this… AUTISM REALITIES
It saddens me to confirm, progress is not always a reality in many households.
Parents are being told to light it up blue, to pay for walks or to use a puzzle piece to show awareness towards autism.
These meaningless symbols do not represent actual needs. These meaningless symbols do not create opportunity to enjoy quality of life. These meaningless symbols keep parents in a circle of false hope as autism continues to challenge everyone’s existence.
Autism is not easy. Autism is complicated. Not everyone understands autism.
Economics, politics, science, philosophy and all the forces of the universe have us in this conundrum and we the parents do what we can to the best of our abilities.
My thoughts this year:
Don’t dare highlight blue lights in April when…
A parent tried to kill her child with #autism
A teacher verbally abuses a student
School districts violate federal law
Law enforcement is not 100% trained
Bus drivers and teacher assistants rape girls
30% of marriages end separated or divorced
Moms have #PTSD and #Depression due to lack of support from doctors/therapists/academia
Academia is behind in thought process and suggestions how to live/handle/manage the diagnosis
Doctors diagnosing still tell parents there is no hope, this is how your child is going to be and will end up in an institution
Ignorance and fear reign rampant
Insurance companies limit or do not cover the wide array of therapies that can help achieve quality of life
Teachers to be do not receive appropriate training prior to working with our kids!
Individuals with severe autism are poorly served by the organizations claiming to support their needs
Poverty reduces the possibility to seek quality of life – parents are not given the opportunity to learn about self-entrepeneurship or become acquainted with their rights
Per the CDC – now, 1 in 36 kids have developmental disabilities
and tons more…
THE EYE (12/2017) by Thomais V. Moshopoulos
This creation is the result of a question asked to my daughter – now that she can talk —
I asked: “What do you see?”
She answered: “I used to see rainbows”
I asked: “Do you still see rainbows?”
She answered: “Not anymore”
I asked her to draw what she saw and this is the result.
This instance is a classic. Why? Because assistants and a teacher treated her without kindness and respect two years ago. And for the past 6 months she’s capable of expressing her memories in vivid detail.
Every month she goes through OCD and a PTSD episode and she repeats the same details over and over. She cries and asks why did this happen to her.
As a parent I say: ENOUGH IS ENOUGH!
Another parent states: “every single day there is more lack of empathy. I am totally disgusted”
A combination of factors allow this abuse to take place and our children pay for it.
My main message: existing training prior to being hired is not effective, it cannot be Academia based. It has to be training led by parents.
But in order to get approval for any kind of training of teachers, politics have to be involved.
They will be hearing from us soon!
Sources of Information—Who Are the Best Reporters?
Due to their core deficits in communication, emotional
understanding, and expression, children with ASD are often
poor reporters of their own psychological symptoms
and under-report problems on symptom rating scales
(Mazefsky et al. 2011; White et al. 2012). Clinicians have
come to rely on the reports of parents or other observers…