Thomais has autism. She is understanding and acknowledging her EMOTIONS. She is also learning it is important to express them and there are many ways to do this…
Thomais was learning 3 languages, reaching milestones like any other child – until December 2010 when she had a massive regression. She stopped talking, lining up toys, behavior crisis began and she was sick every month.
Almost 7 years later, after many interventions, therapies, over doses of love, patience and attention, Thomais is capable of engaging the day to day. She faces many challenges and as time passes they are easier to manage…
Oct 2017 – Song to Fall Asleep – After Hurricane Maria, a family member who lost her home could not sleep… Thomais has sung various versions of this for her… She’s laughed and put her mind in a different place briefly… May it bring peace and laughter to your home as well… #Autism does not stop her from feeling for others!!
Explaining the concept of a raffle takes many efforts, subtleties and the classic be ready for the unexpected survival skill we parents – diagnosis or not – utilize quite efficiently…
At 9yrs old this became a fun experience, drawing it made it easier to handle…
Bottom line: Emotions shared and unwillingly comprehending she did not win and she has to deal with it…
A big plus… no behavior crisis, no torture for no one…
We continue… Enjoy!
As a parent I could not be more at peace, relieved, proud and accomplished.
This sentiment, being aware of it, is instilled at home. My day as a parent could have been as challenging as it can be, as complicated as it could get… yet, I’ll always make the choice to guarantee my daughter will hear from me, I am proud of her.
The source of pride is love which supercedes all confrontations with reality I may face. Yes, that unconditional love parenting promotes.
The source of pride is prioritizing what we are and how my actions will influence and/or impress my daughter.
I invite every parent to put aside – for a minute – all worries, source of pressure, frustrations we all face as we raise or care for our child/adult with a diagnosis. Say it with my daughter, say it with me – I am proud of me.
Do not miss the opportunity to communicate this powerful idea, thought with your loved ones.
Now I understand why Hollywood, Netflix, HBO, ABC, CBS, NBC, Disney, Nickelodeon, Broadway, etc. will not hire actors with a diagnosis, with obvious or mild challenges.
Video: Trolls and Friends The Musical, Dunedin Community Center, FL
In an attempt to entertain, the writing may reflect some of the realities faced by an individual who is considered to have limitations. But a trained actor is the one hired to perform the role of someone they have no knowledge of, they cannot relate to, many times, they don’t even respect who they are. This trained actor pretends to have a diagnosis and pretends to make others laugh or cry. Decent writing and marketing may save the show. This is pathetic, ridiculous and short sighted.
As a parent, I realize I must constantly open more doors to assist the process of understanding what life can be about… With a diagnosis like autism, on any given day, it can be so challenging to help your offspring understand the meaning of different situations we can witness. Today was a breeze. Today was all about being connected and wanting to be a part of the world.
Our presence at the Women’s March in St. Pete FL was so enriching, exciting.
Our sign said:
REMEMBER: AUTISM IS NOT SCARY!
WE NEED MORE +MEDIA COVERAGE
My daughter was all ready to ask for pictures, to raise her megaphone voice and say it – Autism is not scary!