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I HAVE AUTISM! ACCEPT ME…

Thomais has autism. She can now speak – after a massive regression in Dec. 2010.

As time passes, her prowess with language and body expressions is obvious and beyond enjoyable. At the same time, her message is clear, concise and beyond real.

I HAVE AUTISM… ACCEPT ME!

Thomais wants to be acknowledged, accepted, understood, respected – she wants to belong.#Autism can present challenges. The rest of the world needs to hear from those living it, to better understand what it can be about.Find out more about Thomais here: www.autismhappykingdom.com#twominutewonderclip

Posted by Autism: The Happy Kingdom on Thursday, April 12, 2018

 

She wants to be acknowledged, accepted, understood, respected – she wants to belong. #Autism can present challenges. The rest of the world needs to hear from those living it, to better understand what it can be about.

This was Thomais’ reality in 2012… behavior crisis that could last 2 hours… https://www.youtube.com/watch?v=vfcRx… It is no longer the case… Now we celebrate her!

Find out more about Thomais here: www.autismhappykingdom.com

#twominutewonderclip

NOTE: I am aware not every family can have their child communicate the way Thomais does. We have been there. We survived the not knowing or understanding. May Thomais’s words help those around you understand what your child/teen/adult could be experiencing.

 

 

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SAY IT WITH ME – WE WANT ACTION NOT #AWARENESS

Last April I wrote this… AUTISM REALITIES

It saddens me to confirm, progress is not always a reality in many households.

Parents are being told to light it up blue, to pay for walks or to use a puzzle piece to show awareness towards autism.

These meaningless symbols do not represent actual needs. These meaningless symbols do not create opportunity to enjoy quality of life. These meaningless symbols keep parents in a circle of false hope as autism continues to challenge everyone’s existence.

Autism is not easy. Autism is complicated. Not everyone understands autism.

Economics, politics, science, philosophy and all the forces of the universe have us in this conundrum and we the parents do what we can to the best of our abilities.

My thoughts this year:

We want action NOT #awareness
We need #mediainclusion
We need real options, steps to follow to seek quality of life…

Don’t dare highlight blue lights in April when…

A parent tried to kill her child with #autism
A teacher verbally abuses a student
School districts violate federal law
Law enforcement is not 100% trained
Bus drivers and teacher assistants rape girls
30% of marriages end separated or divorced
Moms have #PTSD and #Depression due to lack of support from doctors/therapists/academia
Academia is behind in thought process and suggestions how to live/handle/manage the diagnosis

Doctors diagnosing still tell parents there is no hope, this is how your child is going to be and will end up in an institution
Ignorance and fear reign rampant

Insurance companies limit or do not cover the wide array of therapies that can help achieve quality of life

Teachers to be do not receive appropriate training prior to working with our kids!

Individuals with severe autism are poorly served by the organizations claiming to support their needs
Poverty reduces the possibility to seek quality of life – parents are not given the opportunity to learn about self-entrepeneurship or become acquainted with their rights
Per the CDC – now, 1 in 36 kids have developmental disabilities
and tons more…

Talk to my daughter and I, we have tons more to share… We do not demand a perfect world. We simply want things to improve and we are ready and willing to be a part of the process.

 

THE EYE (12/2017) by Thomais V. Moshopoulos

This creation is the result of a question asked to my daughter – now that she can talk —

I asked: “What do you see?”

She answered: “I used to see rainbows”

I asked: “Do you still see rainbows?”

She answered: “Not anymore”

I asked her to draw what she saw and this is the result.

 

Read:  THOMAIS MEDIA CHALLENGE

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Girl with autism – now verbal – shares abuse in school

My daughter Thomais can now speak — 6 years ago she could not!

This instance is a classic. Why? Because assistants and a teacher treated her without kindness and respect two years ago. And for the past 6 months she’s capable of expressing her memories in vivid detail.
Every month she goes through OCD and a PTSD episode and she repeats the same details over and over. She cries and asks why did this happen to her.

As a parent I say: ENOUGH IS ENOUGH!
Another parent states: “every single day there is more lack of empathy. I am totally disgusted”

A combination of factors allow this abuse to take place and our children pay for it.
My main message: existing training prior to being hired is not effective, it cannot be Academia based. It has to be training led by parents.

But in order to get approval for any kind of training of teachers, politics have to be involved.
They will be hearing from us soon!

This is her video from 2 years ago – as she revealed her experience.

Great research here:

Sources of Information—Who Are the Best Reporters?
Due to their core deficits in communication, emotional
understanding, and expression, children with ASD are often
poor reporters of their own psychological symptoms
and under-report problems on symptom rating scales
(Mazefsky et al. 2011; White et al. 2012). Clinicians have
come to rely on the reports of parents or other observers…

 

Parents to Parents Panel: How to keep our teens/adults safe?

How to keep our teens/adults safe?

Our adults with a disability – mild or severe — what are all of the areas to consider to guarantee parents and community are doing their all?

Safety must always be #1

How can you, as a parent, avoid abuse, neglect and exploitation?

How can you avoid financial exploitation?

How can you avoid emotional abuse?

Join us. Let’s brainstorm and discuss this serious matter.  A Sheriff from Pinellas Sheriff Office will be present to answer questions!

 

The event is organized by three of the featured guests of the Regional Emmy nominated WEDU-PBS broadcast:

Autism Town Hall Meeting – Breakthrough to Hope ( watch it here: wedu.org/autism ):

Ann Millan
 www.autism-believe-future.com

Yadira V. Calderon
 www.autismhappykingdom.com

Filomena McDonald
 Gulf Coast Autism Assoc Internet: http://gulfcoastautism.org/

A reading to share emotions: The Story of Thomais

NOVEMBER 2017 – Laura Harris from WFTS – The Now Tampa Bay Interviewed Thomais!

Click the picture to watch!

 

Click the link to watch the video:    Fave page from book…

All families – diagnosis or not – are welcomed to join Thomais as she reads favorite pages from her book “The Story of Thomais”.

Thomais recently expressed: “Parents you must also share your emotions with your kids!

In a safe and child friendly environment children and parents will share, using words or drawing, their emotions.

EMOTIONS  – Thomais latest video!

NOTE:  We’ll be collecting items – canned food and/or grocery store gift cards to be given away during The Harbor Dish Thanksgiving celebration —     Details here: https://www.facebook.com/harbordish/

 

Read about her book – The Story of Thomais

Thomais has autism. She is understanding and acknowledging her EMOTIONS. She is also learning it is important to express them and there are many ways to do this…

Thomais was learning 3 languages, reaching milestones like any other child – until December 2010 when she had a massive regression. She stopped talking, lining up toys, behavior crisis began and she was sick every month.

April 2012, what we lived  –   https://www.youtube.com/watch?v=vfcRxgTZVHk

Almost 7 years later, after many interventions, therapies, over doses of love, patience and attention, Thomais is capable of engaging the day to day. She faces many challenges and as time passes they are easier to manage…

 

REFERENCES-

Deborah McNamara, Ph.D.  – Five Things You Might Not Know About Human Emotion

 

Background info – videos showing past experiences/reality and progress!

Sept 2017 – Surviving Hurricane Irma
https://www.facebook.com/yadira.c1/videos/10103269090054464/?permPage=1

Oct 2017 – Song to Fall Asleep – After Hurricane Maria, a family member who lost her home could not sleep… Thomais has sung various versions of this for her… She’s laughed and put her mind in a different place briefly… May it bring peace and laughter to your home as well… #Autism does not stop her from feeling for others!!

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THE MEDIA!!!

We are so thankful to the members of the press that have expressed interest in our projects in the U.S.A., South America and Europe.

Visit our news page here!

 

 

 

 

 

 

 

 

* OCTOBER 2017 –  REGIONAL EMMY NOMINATION FOR WEDU-PBS broadcast  – Autism Town Hall Meeting: Breakthrough to Hope

  • Congratulations to the producers – especially Spencer Briggs and Marketing Director Joyce Cotton!

  • Honored to be a part of this spectacular production!!

 

  *  EL COMERCIO – PERU  – published Thomais interview with Teacher Chris!

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Learning about Raffles!

Greatest experience ever…  another one!

To see my daughter being a kid and learning the big lessons in life

Enjoy her creation, words, illustrations and expression of emotions…

Video here: Raffles Really Really Stink by Thomais

Individuals in the spectrum are very literal

Explaining the concept of a raffle takes many efforts, subtleties and the classic be ready for the unexpected survival skill we parents – diagnosis or not – utilize quite efficiently…

At 9yrs old this became a fun experience, drawing it made it easier to handle…
Bottom line: Emotions shared and unwillingly comprehending she did not win and she has to deal with it…
A big plus… no behavior crisis, no torture for no one…
We continue… Enjoy!

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Proud of me!

My daughter is 9 years old.

My daughter has autism.

My daughter is proud of who she is.

As a parent I could not be more at peace, relieved, proud and accomplished.

This sentiment, being aware of it, is instilled at home. My day as a parent could have been as challenging as it can be, as complicated as it could get… yet, I’ll always make the choice to guarantee my daughter will hear from me, I am proud of her.

The source of pride is love which supercedes all confrontations with reality I may face. Yes, that unconditional love parenting promotes.

The source of pride is prioritizing what we are and how my actions will influence and/or impress my daughter.

I invite every parent to put aside – for a minute – all worries, source of pressure, frustrations we all face as we raise or care for our child/adult with a diagnosis. Say it with my daughter, say it with me – I am proud of me.

Do not miss the opportunity to communicate this powerful idea, thought with your loved ones.

Let me know how it goes!

 

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Hollywood can’t handle talent with a diagnosis!

Now I understand why Hollywood, Netflix, HBO, ABC, CBS, NBC, Disney, Nickelodeon, Broadway, etc. will not hire actors with a diagnosis, with obvious or mild challenges.

Video: Trolls and Friends  The Musical, Dunedin Community Center, FL

In an attempt to entertain, the writing may reflect some of the realities faced by an individual who is considered to have limitations. But a trained actor is the one hired to perform the role of someone they have no knowledge of, they cannot relate to, many times, they don’t even respect who they are. This trained actor pretends to have a diagnosis and pretends to make others laugh or cry. Decent writing and marketing may save the show. This is pathetic, ridiculous and short sighted.

Continue reading Hollywood can’t handle talent with a diagnosis!

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AUTISM REALITIES

We know all about autism awareness.

We want action. Life with autism is 365 days, 24/7…

These are various posts  I shared in social media. They reflect the reality of many families. For many it’s been the same or worse for 10+ years. The media rarely reports on these matters.

Do share!

Continue reading AUTISM REALITIES