Posted on

I HAVE AUTISM! ACCEPT ME…

Thomais has autism. She can now speak – after a massive regression in Dec. 2010.

As time passes, her prowess with language and body expressions is obvious and beyond enjoyable. At the same time, her message is clear, concise and beyond real.

I HAVE AUTISM… ACCEPT ME!

Thomais wants to be acknowledged, accepted, understood, respected – she wants to belong.#Autism can present challenges. The rest of the world needs to hear from those living it, to better understand what it can be about.Find out more about Thomais here: www.autismhappykingdom.com#twominutewonderclip

Posted by Autism: The Happy Kingdom on Thursday, April 12, 2018

 

She wants to be acknowledged, accepted, understood, respected – she wants to belong. #Autism can present challenges. The rest of the world needs to hear from those living it, to better understand what it can be about.

This was Thomais’ reality in 2012… behavior crisis that could last 2 hours… https://www.youtube.com/watch?v=vfcRx… It is no longer the case… Now we celebrate her!

Find out more about Thomais here: www.autismhappykingdom.com

#twominutewonderclip

NOTE: I am aware not every family can have their child communicate the way Thomais does. We have been there. We survived the not knowing or understanding. May Thomais’s words help those around you understand what your child/teen/adult could be experiencing.

 

 

Posted on

SAY IT WITH ME – WE WANT ACTION NOT #AWARENESS

Last April I wrote this… AUTISM REALITIES

It saddens me to confirm, progress is not always a reality in many households.

Parents are being told to light it up blue, to pay for walks or to use a puzzle piece to show awareness towards autism.

These meaningless symbols do not represent actual needs. These meaningless symbols do not create opportunity to enjoy quality of life. These meaningless symbols keep parents in a circle of false hope as autism continues to challenge everyone’s existence.

Autism is not easy. Autism is complicated. Not everyone understands autism.

Economics, politics, science, philosophy and all the forces of the universe have us in this conundrum and we the parents do what we can to the best of our abilities.

My thoughts this year:

We want action NOT #awareness
We need #mediainclusion
We need real options, steps to follow to seek quality of life…

Don’t dare highlight blue lights in April when…

A parent tried to kill her child with #autism
A teacher verbally abuses a student
School districts violate federal law
Law enforcement is not 100% trained
Bus drivers and teacher assistants rape girls
30% of marriages end separated or divorced
Moms have #PTSD and #Depression due to lack of support from doctors/therapists/academia
Academia is behind in thought process and suggestions how to live/handle/manage the diagnosis

Doctors diagnosing still tell parents there is no hope, this is how your child is going to be and will end up in an institution
Ignorance and fear reign rampant

Insurance companies limit or do not cover the wide array of therapies that can help achieve quality of life

Teachers to be do not receive appropriate training prior to working with our kids!

Individuals with severe autism are poorly served by the organizations claiming to support their needs
Poverty reduces the possibility to seek quality of life – parents are not given the opportunity to learn about self-entrepeneurship or become acquainted with their rights
Per the CDC – now, 1 in 36 kids have developmental disabilities
and tons more…

Talk to my daughter and I, we have tons more to share… We do not demand a perfect world. We simply want things to improve and we are ready and willing to be a part of the process.

 

THE EYE (12/2017) by Thomais V. Moshopoulos

This creation is the result of a question asked to my daughter – now that she can talk —

I asked: “What do you see?”

She answered: “I used to see rainbows”

I asked: “Do you still see rainbows?”

She answered: “Not anymore”

I asked her to draw what she saw and this is the result.

 

Read:  THOMAIS MEDIA CHALLENGE

Posted on

Girl with autism – now verbal – shares abuse in school

My daughter Thomais can now speak — 6 years ago she could not!

This instance is a classic. Why? Because assistants and a teacher treated her without kindness and respect two years ago. And for the past 6 months she’s capable of expressing her memories in vivid detail.
Every month she goes through OCD and a PTSD episode and she repeats the same details over and over. She cries and asks why did this happen to her.

As a parent I say: ENOUGH IS ENOUGH!
Another parent states: “every single day there is more lack of empathy. I am totally disgusted”

A combination of factors allow this abuse to take place and our children pay for it.
My main message: existing training prior to being hired is not effective, it cannot be Academia based. It has to be training led by parents.

But in order to get approval for any kind of training of teachers, politics have to be involved.
They will be hearing from us soon!

This is her video from 2 years ago – as she revealed her experience.

Great research here:

Sources of Information—Who Are the Best Reporters?
Due to their core deficits in communication, emotional
understanding, and expression, children with ASD are often
poor reporters of their own psychological symptoms
and under-report problems on symptom rating scales
(Mazefsky et al. 2011; White et al. 2012). Clinicians have
come to rely on the reports of parents or other observers…

 

Parents to Parents Panel: How to keep our teens/adults safe?

How to keep our teens/adults safe?

Our adults with a disability – mild or severe — what are all of the areas to consider to guarantee parents and community are doing their all?

Safety must always be #1

How can you, as a parent, avoid abuse, neglect and exploitation?

How can you avoid financial exploitation?

How can you avoid emotional abuse?

Join us. Let’s brainstorm and discuss this serious matter.  A Sheriff from Pinellas Sheriff Office will be present to answer questions!

 

The event is organized by three of the featured guests of the Regional Emmy nominated WEDU-PBS broadcast:

Autism Town Hall Meeting – Breakthrough to Hope ( watch it here: wedu.org/autism ):

Ann Millan
 www.autism-believe-future.com

Yadira V. Calderon
 www.autismhappykingdom.com

Filomena McDonald
 Gulf Coast Autism Assoc Internet: http://gulfcoastautism.org/

A reading to share emotions: The Story of Thomais

NOVEMBER 2017 – Laura Harris from WFTS – The Now Tampa Bay Interviewed Thomais!

Click the picture to watch!

 

Click the link to watch the video:    Fave page from book…

All families – diagnosis or not – are welcomed to join Thomais as she reads favorite pages from her book “The Story of Thomais”.

Thomais recently expressed: “Parents you must also share your emotions with your kids!

In a safe and child friendly environment children and parents will share, using words or drawing, their emotions.

EMOTIONS  – Thomais latest video!

NOTE:  We’ll be collecting items – canned food and/or grocery store gift cards to be given away during The Harbor Dish Thanksgiving celebration —     Details here: https://www.facebook.com/harbordish/

 

Read about her book – The Story of Thomais

Thomais has autism. She is understanding and acknowledging her EMOTIONS. She is also learning it is important to express them and there are many ways to do this…

Thomais was learning 3 languages, reaching milestones like any other child – until December 2010 when she had a massive regression. She stopped talking, lining up toys, behavior crisis began and she was sick every month.

April 2012, what we lived  –   https://www.youtube.com/watch?v=vfcRxgTZVHk

Almost 7 years later, after many interventions, therapies, over doses of love, patience and attention, Thomais is capable of engaging the day to day. She faces many challenges and as time passes they are easier to manage…

 

REFERENCES-

Deborah McNamara, Ph.D.  – Five Things You Might Not Know About Human Emotion

 

Background info – videos showing past experiences/reality and progress!

Sept 2017 – Surviving Hurricane Irma
https://www.facebook.com/yadira.c1/videos/10103269090054464/?permPage=1

Oct 2017 – Song to Fall Asleep – After Hurricane Maria, a family member who lost her home could not sleep… Thomais has sung various versions of this for her… She’s laughed and put her mind in a different place briefly… May it bring peace and laughter to your home as well… #Autism does not stop her from feeling for others!!

Posted on

TINDERELLA – A FREE E-BOOK!

Yes, a FREE e-book!

Get it here

Thomais learned to read like her peers in the period from March 2016-March 2017.

An incredible tutor made it happen… Mrs. K will remain in our hearts and lives for eternity…

Her patience, dedication and willingness to teach and learn from Thomais is unequaled.

Thomais’s autism behaviors challenged the process and everyone persevered.

Thomais’s dyslexia never hindered the process. On the contrary, Mrs. K’s multisensory methods, knowledge of a variety of existing interventions guided the process. Above all, a love for teaching.

 

Enjoy one of Thomais’s creations as she continues to express her emotions, curiosity and above all, her inventiveness.

Share the book. Please comment!

Contact: autismhappykingdom@gmail.com

Posted on

THE MEDIA!!!

We are so thankful to the members of the press that have expressed interest in our projects in the U.S.A., South America and Europe.

Visit our news page here!

 

 

 

 

 

 

 

 

* OCTOBER 2017 –  REGIONAL EMMY NOMINATION FOR WEDU-PBS broadcast  – Autism Town Hall Meeting: Breakthrough to Hope

  • Congratulations to the producers – especially Spencer Briggs and Marketing Director Joyce Cotton!

  • Honored to be a part of this spectacular production!!

 

  *  EL COMERCIO – PERU  – published Thomais interview with Teacher Chris!

Posted on

A diagnosis does not give anyone the right to insult others…

I will highlight and cheer for those who treat us with respect. Always! It is so important to give feedback and communicate with those who respect your needs, strengths and weaknesses.

I will also highlight those who do not respect the fact we are members of this immense planet and for one reason or another, seek special treatment.

What happened? Another learning experience at the park…

Kids all over, screaming, having fun, little groups here and there. My kid is by herself. Sometimes I can tell she’s fine with this reality. Other times she’s not and she goes out there and asks, do you want to play with me. My heart melts every time I hear her… 3-6yrs ago, she could not do this! Now she can. Now she has power. Now she has the tools to engage, socialize and learn from others, while they also learn with her.

She approaches this  group of kids… They all know each other. A couple of them were receptive to her request. Others ignored her – she does not like this! One flat out rejected her and began to make weird noises towards her. Of course, this bothers her and I remind Thomais — just ignore him. But she can’t!!

No one likes to feel rejected. In her case, as with many, instead of focusing on those who showed receptiveness to her request. She focused on the rejection. I let her be at this point. She has to learn to figure this out and I will not always be around.

She started to make noises at him as well and called him a bully. I laughed because I welcomed this original approach (that she can do now!) and she was being a kid.

It all turned messy when the boy decided to call her an idiot. Oh no I thought. And her reaction was pure emotion, sadness and she ran away from the group. She screamed: “No one had ever called me an idiot. Why did he do this mom?”

I reminded her: “You are not that. You are an incredible young girl. You are loving. You are fun. Go talk to his mom.”

Before she reaches the mom, his sisters start screaming… “He cannot help himself. He has a heart condition. He always does this!”

I am livid… A young boy with a disability who has not been taught to respect others and is being allowed by the adults in his family to say whatever he thinks. And his relatives are protecting his actions under the premise of lack of control and a heart condition.

I tell the girls. Excuse me, understand something; he has a disability but that does not give him the right to treat others like he just did. That is wrong. The girls kept insisting his heart condition is responsible for this.

I said no, that is not true. My daughter has autism and I teach her to treat others with respect. We do not use her autism as an excuse to cover up the challenges and many times, the lack of  filter in what she may say.

By now, Thomais reached the mom. She told her. The mom did nothing.

Thomais returns to the group and the girls made the effort to talk to her and include her in the brief game. I thanked the girls for their efforts. I reminded Thomais, let’s move on, look the girls want to play with you.

The young boy who insulted her stopped saying the insulting disrespectful word after I asked him to do so.

My heart is still heavy remembering her face, her disappointment and once in a while when OCD (obsessive compulsive disorder) tries to take control of the day, she brings up that event.

I will continue to remind her — we all have challenges, we all have super positive traits, we must always be respectful of the differences. It will be very boring if we were all the same. You are a person, you have a heart and a soul  — autism does not rule your existence, please remember that.

My wish… That other parents of children with a diagnosis share similar messages, regardless of the challenges. Our kids’ apparent limitations cannot stop them from being amazing beings and it cannot be an excuse to mistreat others. None of us should accept that.

Posted on

An interview that challenged my soul!

The Crazy Mind approached me. They said… “We have been following you for a bit thanks to a friend. What you do is very particular, focused, original. We want to interview you!”

Of course, I said… YES…

It was a very different interview. The questions asked time after time went deeper and at times, it felt very uncomfortable.  Why? Because they wanted the truth.

Here is the final product.  Enjoy!

Parents-to-Parents education on the benefit of therapies and nutrition

The Tampa Bay special needs community is invited to participate in a panel titled:

Parents-to-Parents education on the benefit of therapies and nutrition

Join Gulf Coast Autism Association http://gulfcoastautism.org/  and Florida Institute on Community and Disability (FICD) www.myFICD.org as they support Yadira V. Calderon, a local author and advocate who insists: “Informed parents make the best decisions”.

Many children and adults with a diagnosis face a variety of challenges – physical, medical, developmental. A plethora of researched and tried services, therapies and lifestyle changes are at the disposal of the families. The purpose of this panel is to present valuable information so families can make informed decisions.

The event takes place on

Saturday, Sept 30, 2017,

12:30-2:30 pm

Countryside Library Clearwater

2642 Sabal Springs Dr. Clearwater, Florida, FL 33761

The speakers:
Kid Pro Therapy Services Inc President/Owner, LorRainne Jones, M.A., CCC-SLP, Ph.D., BCBA-D. She will do an overview of the benefit of today’s therapies and the importance of parent mediated interventions. http://www.kidprotherapy.com/

Hayes Family Chiropractic — Dr. Christopher Hayes, DC will present the benefits of chiropractic care and how he helps patients achieve the best health and quality of life possible http://hayesfamilychiro.com/

The event is organized by three of the featured guests of WEDU-PBS broadcast Autism Town Hall Meeting – Breakthrough to Hope ( watch it here: wedu.org/autism ):

Ann Millan
    www.autism-believe-future.com

Yadira V. Calderon
     www.autismhappykingdom.com

Filomena McDonald
     Gulf Coast Autism Assoc       Internet: http://gulfcoastautism.org/

 

LorRainne Jones shares why this event is so relevant! (click the picture)