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SAY IT WITH ME – WE WANT ACTION NOT #AWARENESS

Last April I wrote this… AUTISM REALITIES

It saddens me to confirm, progress is not always a reality in many households.

Parents are being told to light it up blue, to pay for walks or to use a puzzle piece to show awareness towards autism.

These meaningless symbols do not represent actual needs. These meaningless symbols do not create opportunity to enjoy quality of life. These meaningless symbols keep parents in a circle of false hope as autism continues to challenge everyone’s existence.

Autism is not easy. Autism is complicated. Not everyone understands autism.

Economics, politics, science, philosophy and all the forces of the universe have us in this conundrum and we the parents do what we can to the best of our abilities.

My thoughts this year:

We want action NOT #awareness
We need #mediainclusion
We need real options, steps to follow to seek quality of life…

Don’t dare highlight blue lights in April when…

A parent tried to kill her child with #autism
A teacher verbally abuses a student
School districts violate federal law
Law enforcement is not 100% trained
Bus drivers and teacher assistants rape girls
30% of marriages end separated or divorced
Moms have #PTSD and #Depression due to lack of support from doctors/therapists/academia
Academia is behind in thought process and suggestions how to live/handle/manage the diagnosis

Doctors diagnosing still tell parents there is no hope, this is how your child is going to be and will end up in an institution
Ignorance and fear reign rampant

Insurance companies limit or do not cover the wide array of therapies that can help achieve quality of life

Teachers to be do not receive appropriate training prior to working with our kids!

Individuals with severe autism are poorly served by the organizations claiming to support their needs
Poverty reduces the possibility to seek quality of life – parents are not given the opportunity to learn about self-entrepeneurship or become acquainted with their rights
Per the CDC – now, 1 in 36 kids have developmental disabilities
and tons more…

Talk to my daughter and I, we have tons more to share… We do not demand a perfect world. We simply want things to improve and we are ready and willing to be a part of the process.

 

THE EYE (12/2017) by Thomais V. Moshopoulos

This creation is the result of a question asked to my daughter – now that she can talk —

I asked: “What do you see?”

She answered: “I used to see rainbows”

I asked: “Do you still see rainbows?”

She answered: “Not anymore”

I asked her to draw what she saw and this is the result.

 

Read:  THOMAIS MEDIA CHALLENGE

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TINDERELLA – A FREE E-BOOK!

Yes, a FREE e-book!

Get it here

Thomais learned to read like her peers in the period from March 2016-March 2017.

An incredible tutor made it happen… Mrs. K will remain in our hearts and lives for eternity…

Her patience, dedication and willingness to teach and learn from Thomais is unequaled.

Thomais’s autism behaviors challenged the process and everyone persevered.

Thomais’s dyslexia never hindered the process. On the contrary, Mrs. K’s multisensory methods, knowledge of a variety of existing interventions guided the process. Above all, a love for teaching.

 

Enjoy one of Thomais’s creations as she continues to express her emotions, curiosity and above all, her inventiveness.

Share the book. Please comment!

Contact: autismhappykingdom@gmail.com

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THE MEDIA!!!

We are so thankful to the members of the press that have expressed interest in our projects in the U.S.A., South America and Europe.

Visit our news page here!

 

 

 

 

 

 

 

 

* OCTOBER 2017 –  REGIONAL EMMY NOMINATION FOR WEDU-PBS broadcast  – Autism Town Hall Meeting: Breakthrough to Hope

  • Congratulations to the producers – especially Spencer Briggs and Marketing Director Joyce Cotton!

  • Honored to be a part of this spectacular production!!

 

  *  EL COMERCIO – PERU  – published Thomais interview with Teacher Chris!

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Learning about Raffles!

Greatest experience ever…  another one!

To see my daughter being a kid and learning the big lessons in life

Enjoy her creation, words, illustrations and expression of emotions…

Video here: Raffles Really Really Stink by Thomais

Individuals in the spectrum are very literal

Explaining the concept of a raffle takes many efforts, subtleties and the classic be ready for the unexpected survival skill we parents – diagnosis or not – utilize quite efficiently…

At 9yrs old this became a fun experience, drawing it made it easier to handle…
Bottom line: Emotions shared and unwillingly comprehending she did not win and she has to deal with it…
A big plus… no behavior crisis, no torture for no one…
We continue… Enjoy!

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Hollywood can’t handle talent with a diagnosis!

Now I understand why Hollywood, Netflix, HBO, ABC, CBS, NBC, Disney, Nickelodeon, Broadway, etc. will not hire actors with a diagnosis, with obvious or mild challenges.

Video: Trolls and Friends  The Musical, Dunedin Community Center, FL

In an attempt to entertain, the writing may reflect some of the realities faced by an individual who is considered to have limitations. But a trained actor is the one hired to perform the role of someone they have no knowledge of, they cannot relate to, many times, they don’t even respect who they are. This trained actor pretends to have a diagnosis and pretends to make others laugh or cry. Decent writing and marketing may save the show. This is pathetic, ridiculous and short sighted.

Continue reading Hollywood can’t handle talent with a diagnosis!

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AUTISM REALITIES

We know all about autism awareness.

We want action. Life with autism is 365 days, 24/7…

These are various posts  I shared in social media. They reflect the reality of many families. For many it’s been the same or worse for 10+ years. The media rarely reports on these matters.

Do share!

Continue reading AUTISM REALITIES

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I am an educated woman, I earn minimum wage and I get food stamps . Here’s why.

by Yadira V. Calderon

I am obsessed with traveling, discovering and understanding life. I became the editor of a trade publication for the baking industry and visited most Spanish speaking countries. I did Logistics for the cement industry. I taught American Government in China. Everywhere I went, as a tourist or as a professional, I sought the opportunity to interact with families, experience commitment and going beyond the expectations to achieve that goal. I saw my education and curiosity as the means to an end.

Six years ago everything was about to change and I did not know it. The drive, the push, the non-stop urge to climb Mt. Kilimanjaro or ride the Trans-Siberian train all became futile and senseless when my daughter regressed into autism from one day to the next. December 2010 forever changed my life and perspective.

Continue reading I am an educated woman, I earn minimum wage and I get food stamps . Here’s why.

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About the #media and its reporting, portrayal of individuals with disabilities

The #media and its reporting, portrayal of individuals with disabilities (obvious and non-obvious) is dismal.
Reporting of events having to do with pets or gory stories are prioritized over 15-30 seconds of reality from a disabled perspective.

 

** FACT: Stories with roles based on a disabled individual are not a part of TV shows/movies – As the The Ruderman Family Foundation White Paper states – 95% OF CHARACTERS WITH DISABILITIES ARE PLAYED BY ABLE-BODIED ACTORS

** FACT: Out of 8 events I organized – promoting acceptance, inclusion, awareness, parental empowerment — 2 received media coverage (greatly appreciate support from Natalia Rodriguez and Gaby Romero)
https://www.facebook.com/JustAutismNoPanicRight/events/…

How to correct this?