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SAY IT WITH ME – WE WANT ACTION NOT #AWARENESS

Last April I wrote this… AUTISM REALITIES

It saddens me to confirm, progress is not always a reality in many households.

Parents are being told to light it up blue, to pay for walks or to use a puzzle piece to show awareness towards autism.

These meaningless symbols do not represent actual needs. These meaningless symbols do not create opportunity to enjoy quality of life. These meaningless symbols keep parents in a circle of false hope as autism continues to challenge everyone’s existence.

Autism is not easy. Autism is complicated. Not everyone understands autism.

Economics, politics, science, philosophy and all the forces of the universe have us in this conundrum and we the parents do what we can to the best of our abilities.

My thoughts this year:

We want action NOT #awareness
We need #mediainclusion
We need real options, steps to follow to seek quality of life…

Don’t dare highlight blue lights in April when…

A parent tried to kill her child with #autism
A teacher verbally abuses a student
School districts violate federal law
Law enforcement is not 100% trained
Bus drivers and teacher assistants rape girls
30% of marriages end separated or divorced
Moms have #PTSD and #Depression due to lack of support from doctors/therapists/academia
Academia is behind in thought process and suggestions how to live/handle/manage the diagnosis

Doctors diagnosing still tell parents there is no hope, this is how your child is going to be and will end up in an institution
Ignorance and fear reign rampant

Insurance companies limit or do not cover the wide array of therapies that can help achieve quality of life

Teachers to be do not receive appropriate training prior to working with our kids!

Individuals with severe autism are poorly served by the organizations claiming to support their needs
Poverty reduces the possibility to seek quality of life – parents are not given the opportunity to learn about self-entrepeneurship or become acquainted with their rights
Per the CDC – now, 1 in 36 kids have developmental disabilities
and tons more…

Talk to my daughter and I, we have tons more to share… We do not demand a perfect world. We simply want things to improve and we are ready and willing to be a part of the process.

 

THE EYE (12/2017) by Thomais V. Moshopoulos

This creation is the result of a question asked to my daughter – now that she can talk —

I asked: “What do you see?”

She answered: “I used to see rainbows”

I asked: “Do you still see rainbows?”

She answered: “Not anymore”

I asked her to draw what she saw and this is the result.

 

Read:  THOMAIS MEDIA CHALLENGE

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AUTISM REALITIES

We know all about autism awareness.

We want action. Life with autism is 365 days, 24/7…

These are various posts  I shared in social media. They reflect the reality of many families. For many it’s been the same or worse for 10+ years. The media rarely reports on these matters.

Do share!

Continue reading AUTISM REALITIES

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WEDU PBS Autism Broadcast: Yadira Calderon Is A Featured Guest!

I thank everyone who is making these opportunities possible.

Town Hall — my intervention, segments from Autism and Employability parent panel —   min. 23:28 – 29:04 and min. 48:38 – 49:14

Webcast – min. 4:04 – 4:39

 

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#Autismisnotscary at the Women’s March!

As a parent, I realize I must constantly open more doors to assist the process of understanding what life can be about…  With a diagnosis like autism, on any given day, it can be so challenging to help your offspring understand the meaning of different situations we can witness. Today was a breeze. Today was all about being connected and wanting to be a part of the world.

Our presence at the Women’s March in St. Pete FL was so enriching, exciting.

Our sign said:

REMEMBER:  AUTISM IS NOT SCARY!

WE NEED MORE +MEDIA COVERAGE

My daughter was all ready to ask for pictures, to raise her megaphone voice and say it – Autism is not scary!

Continue reading #Autismisnotscary at the Women’s March!

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About the #media and its reporting, portrayal of individuals with disabilities

The #media and its reporting, portrayal of individuals with disabilities (obvious and non-obvious) is dismal.
Reporting of events having to do with pets or gory stories are prioritized over 15-30 seconds of reality from a disabled perspective.

 

** FACT: Stories with roles based on a disabled individual are not a part of TV shows/movies – As the The Ruderman Family Foundation White Paper states – 95% OF CHARACTERS WITH DISABILITIES ARE PLAYED BY ABLE-BODIED ACTORS

** FACT: Out of 8 events I organized – promoting acceptance, inclusion, awareness, parental empowerment — 2 received media coverage (greatly appreciate support from Natalia Rodriguez and Gaby Romero)
https://www.facebook.com/JustAutismNoPanicRight/events/…

How to correct this?