Los espero… en esta conferencia hablare sobre:
EMPODERAMIENTO DE PADRES – PIEZA CLAVE PARA SOBREVIVIR EL AUTISMO
Objetivos de Aprendizaje
1. Sobrepasar los desafíos del diagnóstico para poder planificar un futuro donde la calidad de vida es la prioridad.
2. Entender a su hijo así el amor y el respeto guían la interacción.
3. Dar prioridad a la vida fuera del hogar.4. Crear un círculo de apoyo que comprenda el autismo en su hogar y sus realidades particulares.
Attendees participate in this exchange– differences and commonalities are considered, discussed.The main purpose is to help attendees gain a better understanding of the autism spectrum diagnosis, how parents deal with it, survive it; so anyone can become an advocate through the use of practical strategies and resources in the community/social media.Most importantly, how to achieve quality of life regardless of the challenges faced.
Yadira V. Calderon has been eating, breathing, sleeping, challenging and accepting autism for the past eight years. She is a dedicated warrior, advocate, radio talk show host, director of short films and author of the soon to be published – Autism: The Happy Kingdom. She holds a M.A. International Relations and Diplomacy, speaks three languages and has lived in six countries, having traveled to another twenty-seven. Her friends know she is determined, persistent, positive, creative, open-minded and realistic, she believes these attributes prepared her to become the mother of ten year-old Thomais.
Yadira has worked as Editor for Trade Publications – Meat and Baking industries; Logistics- Cement Industry; Instructor in China; and Teacher Assistant in 3 middle schools – ESE classrooms. She also provided support to adults with special needs and worked in a retail store.Learning Objectives1. To shift from the challenges of the diagnosis to plan for a future where quality of life is the priority2. To understand your child so love and respect lead the interaction3. To prioritize life outside the household4. To create a circle of support that understands autism in your household and its particular realities
I do not cease to be amazed by the brilliance and resilience demonstrated in so called (incorrectly) third world countries.
Presently, the country of Ghana has an incredible group of mothers (some fathers) who knock on all doors to guarantee future educators have the opportunity to listen about autism and the needs of their kids – – based on their reality!
This is one novel concept and one such group is the Special Mothers Project in Ghana. I have interacted with Mary Amoah, the incredible and power house mom of Nana Yaa. Nana is now a teen, on the autism spectrum, non-verbal. Their experiences in the last 15 years led Mary to pursue advocacy at its maximum level and share the many lessons learned with the upcoming number of parents raising children on the spectrum.
But, the main goal is to educate future teachers about autism and what their children actually need.
From what I understand, in Ghana (or the United States) there are no University courses educating about the academic and social needs of students on the autism spectrum. This is where Mary and her Special Mothers come in.
These super heroes have surpassed the boundaries of bureaucracy and nepotism and have convinced academic leaders to open the doors to offer workshops to future and current teachers — yes, parents educating teachers to be about autism and learning how to learn — regardless of behaviors and countless challenges the diagnosis presents.
I mega applaud them. They have succeeded.
University settings in Ghana acknowledge they need to transmit a variety of messages to the future educators of their country. They also realize autism prevalence in their classrooms and the lack of trained educators. They realize they do not know what autism is all about and it is advantageous to work with those surviving it every day.
Say it with me… The PARENTS!!!
Why do I write about this?
I will continue to write to all universities in the USA requesting similar projects become a part of the curriculum of education.
These experiences shall determine how prepared teachers will be when reaching the classroom and realizing that 10+ of 25 students are capable of learning but need to be taught differently.
Right now, the United States must replicate projects like the Special Mothers Project in Ghana.
What have I done?
Below find the letters sent to the Departments of Education of various universities in Florida.
Only one university responded – UCF.
We have not had the opportunity to meet.
I urge all of you to send similar or completely different emails to these individuals. They need to hear from all of us.
Changes will only take place this way. Books and researchers cannot be the only way future educators shall learn about autism and its realities.
We the parents shall always be a part of this equation.
———- Forwarded message ———
From: YADIRA CALDERON <email@example.com>
Date: Thu, May 3, 2018, 11:26 PM
Subject: Fwd: My daughter speaks… Teachers in Florida…
To: <Brindley@usf.edu>, <firstname.lastname@example.org>, <email@example.com>, <firstname.lastname@example.org>, <email@example.com>, <firstname.lastname@example.org>, <email@example.com>
Representatives of Education in Florida
I have a simple request…
Please read this email carefully.
My daughter and I are ready to meet with you to discuss the reality of many in Florida’s schools.
Our basic need…
Better training of future teachers.
What is being taught and highlighted does not reflect what the system is and prioritizes or what the actual needs of the students are.
Particularly, students with a variety of diagnosis who need Multisensory methodology so they can be taught how to learn.
Many parents end up investing in tutors outside of the school system in order to see our children reading, writing at grade level.
Additionally, teachers to be need sensitivity training to avoid situations like the ones described below.
Yes, I am the kind of parent the school system does not like because I give less praise and do more complaints.
My daughter and her needs represent money to the school. These funds are not properly used and federal law is being violated.
But you know this.
I welcome the opportunity to meet.
Thank you for your time.
Yadira Calderon and Thomais Moshopoulos
Palm Harbor FL
Read about us here…
I was a featured guest in a WEDU PBS broadcast
How to keep our teens/adults safe?
Our adults with a disability – mild or severe — what are all of the areas to consider to guarantee parents and community are doing their all?
Safety must always be #1
How can you, as a parent, avoid abuse, neglect and exploitation?
How can you avoid financial exploitation?
How can you avoid emotional abuse?
Join us. Let’s brainstorm and discuss this serious matter. A Sheriff from Pinellas Sheriff Office will be present to answer questions!
The event is organized by three of the featured guests of the Regional Emmy nominated WEDU-PBS broadcast:
Autism Town Hall Meeting – Breakthrough to Hope ( watch it here: wedu.org/autism ):
Ann Millan www.autism-believe-future.com
Yadira V. Calderon www.autismhappykingdom.com
Filomena McDonald Gulf Coast Autism Assoc Internet: http://gulfcoastautism.org/
NOVEMBER 2017 – Laura Harris from WFTS – The Now Tampa Bay Interviewed Thomais!
Click the picture to watch!
Click the link to watch the video: Fave page from book…
All families – diagnosis or not – are welcomed to join Thomais as she reads favorite pages from her book “The Story of Thomais”.
Thomais recently expressed: “Parents you must also share your emotions with your kids!“
In a safe and child friendly environment children and parents will share, using words or drawing, their emotions.
EMOTIONS – Thomais latest video!
NOTE: We’ll be collecting items – canned food and/or grocery store gift cards to be given away during The Harbor Dish Thanksgiving celebration — Details here: https://www.facebook.
Read about her book – The Story of Thomais
Thomais has autism. She is understanding and acknowledging her EMOTIONS. She is also learning it is important to express them and there are many ways to do this…
Thomais was learning 3 languages, reaching milestones like any other child – until December 2010 when she had a massive regression. She stopped talking, lining up toys, behavior crisis began and she was sick every month.
April 2012, what we lived – https://www.youtube.com/watch?
Almost 7 years later, after many interventions, therapies, over doses of love, patience and attention, Thomais is capable of engaging the day to day. She faces many challenges and as time passes they are easier to manage…
Deborah McNamara, Ph.D. – Five Things You Might Not Know About Human Emotion
Background info – videos showing past experiences/reality and progress!
May 2016 – Empowering Moments
Aug 10, 2017 – First day 4th Grade
Sept 2017 – Surviving Hurricane Irma
Oct 2017 – Song to Fall Asleep – After Hurricane Maria, a family member who lost her home could not sleep… Thomais has sung various versions of this for her… She’s laughed and put her mind in a different place briefly… May it bring peace and laughter to your home as well… #Autism does not stop her from feeling for others!!
I will highlight and cheer for those who treat us with respect. Always! It is so important to give feedback and communicate with those who respect your needs, strengths and weaknesses.
What happened? Another learning experience at the park…
Kids all over, screaming, having fun, little groups here and there. My kid is by herself. Sometimes I can tell she’s fine with this reality. Other times she’s not and she goes out there and asks, do you want to play with me. My heart melts every time I hear her… 3-6yrs ago, she could not do this! Now she can. Now she has power. Now she has the tools to engage, socialize and learn from others, while they also learn with her.
She approaches this group of kids… They all know each other. A couple of them were receptive to her request. Others ignored her – she does not like this! One flat out rejected her and began to make weird noises towards her. Of course, this bothers her and I remind Thomais — just ignore him. But she can’t!!
No one likes to feel rejected. In her case, as with many, instead of focusing on those who showed receptiveness to her request. She focused on the rejection. I let her be at this point. She has to learn to figure this out and I will not always be around.
She started to make noises at him as well and called him a bully. I laughed because I welcomed this original approach (that she can do now!) and she was being a kid.
It all turned messy when the boy decided to call her an idiot. Oh no I thought. And her reaction was pure emotion, sadness and she ran away from the group. She screamed: “No one had ever called me an idiot. Why did he do this mom?”
I reminded her: “You are not that. You are an incredible young girl. You are loving. You are fun. Go talk to his mom.”
Before she reaches the mom, his sisters start screaming… “He cannot help himself. He has a heart condition. He always does this!”
I am livid… A young boy with a disability who has not been taught to respect others and is being allowed by the adults in his family to say whatever he thinks. And his relatives are protecting his actions under the premise of lack of control and a heart condition.
I tell the girls. Excuse me, understand something; he has a disability but that does not give him the right to treat others like he just did. That is wrong. The girls kept insisting his heart condition is responsible for this.
I said no, that is not true. My daughter has autism and I teach her to treat others with respect. We do not use her autism as an excuse to cover up the challenges and many times, the lack of filter in what she may say.
By now, Thomais reached the mom. She told her. The mom did nothing.
Thomais returns to the group and the girls made the effort to talk to her and include her in the brief game. I thanked the girls for their efforts. I reminded Thomais, let’s move on, look the girls want to play with you.
The young boy who insulted her stopped saying the insulting disrespectful word after I asked him to do so.
My heart is still heavy remembering her face, her disappointment and once in a while when OCD (obsessive compulsive disorder) tries to take control of the day, she brings up that event.
I will continue to remind her — we all have challenges, we all have super positive traits, we must always be respectful of the differences. It will be very boring if we were all the same. You are a person, you have a heart and a soul — autism does not rule your existence, please remember that.
My wish… That other parents of children with a diagnosis share similar messages, regardless of the challenges. Our kids’ apparent limitations cannot stop them from being amazing beings and it cannot be an excuse to mistreat others. None of us should accept that.