Conversation about alternative medicine and its benefits.
FL lifted the ban on medicinal cannabis and a dispensary in St Pete FL opened. I was interviewed to discuss our reality — we can’t afford the product, even though we’d benefit immensely from it.
As a parent – I’d have to pay for a consult, then a permit of sorts, plus the product.
Video: Reporter – Beatriz Pares – InfoMas, Tampa FL (July 2017). Subtitled.
Parts of our story!
Athens, Greece — September 2007 – At 40, no plan, I find out I’m pregnant – beautiful emotions, tons of fear…
October-December 2007 – Low placenta – progesterone given. Reflux – took too many TUMS. Too much Tylenol.
Early May – 2008 – Mild preeclampsia and mild gestational diabetes (controlled with nutrition, lost 15obs)
Late May 2008 – My wonder girl was born – C- section after 25+hrs. She was so irritable, screaming so much – as if she was in pain. One week after birth – diarrhea. Two months after birth – changed milk: gave her organic goat milk formula from New Zealand – everything stabilized.
November 2008 – Bronchiolitis – still reaching milestones
January 2009 – First dose of antibiotics – still reaching milestones, smiling, great eye contact
June 2009 – began to walk, a baby having fun
August 2009 – Due to finances – stopped giving organic formula and gave regular, tetra pak cow milk
September 2009 – refused to get on the stroller, major screams/shrieks. I carried her everywhere.
November 2009 – Stopped eating all healthy foods, only wanted dairy and chicken/rice, stopped napping – 18-20hr long days for all, began to walk on tippy toes; more irritable. Began eternal period of very sick every month – ear infections, fever for 7 days straight – tons of Tylenol given; constipation.
June 2010 – Allergic reaction – purple spots in inner thigh area – waking up at 1am screaming/shrieks, vomited a white glob every day, lasted hrs awake – jumping in bed, repeating words from videos she had seen during the day.
December 2010 – My daughter had a massive regression – a kid learning 3 languages, laughing, functioning – changed drastically and did not function/behave/slept/ate/played as she used to…
Puerto Rico – June 2011 – Two developmental pediatricians said – she has moderate to severe autism. Both also said: Autism is Medical, address the medical issues and she will come back to life. Nutrition was changed drastically. Physical activity magnified (beach, parks, walks, runs, pool). ATEC was 150 —
September 2011 – She began to answer to the question What is your name? in Spanish and Greek.
Athens Greece – September 2011-January 2012 – DAN (Defeat Autism Now) protocol and Occupational Therapy – 5 times/week, 1hr every day plus parks, beach, sensory room – Little by little more progress
March-June 2012 — Day care center — very positive experience; many challenges; overall learning for everyone involved. Stopped DAN protocol. Gave fewer supplements and more homeopathy.
April 2012, what we lived – https://www.youtube.com/watch?
Summer 2012 — Intense, many emotions, tears, screams challenges (whole family) – surviving autism
Florida, USA – August 2012-Present — Autism, brain inflammation, Pandas/Pans, ADHD, sensory disintegration – moderate to severe 2012/2015. ATEC now about 8 (during non-flare days).
Alternative medicine used: homeopathy (4 different types/practitioners), CBD from hemp, various supplements, RENS supplement, continuous nutritional changes — Leaps and bounds, improvements more obvious since Fall 2015 to present.
Therapies in school – Language Therapy and Occupational Therapy. No Behavior Therapy.
Dec 2015 –
May 2016 – some of what my kid can do/say…
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