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TOP 40 THINGS ABOUT THOMAIS

Yes, cognition, learning, sharing, demonstrating knowledge acquired, remembering, writing about it, understanding her place in society, acknowledging likes and dislikes… and being funny!

These are all a reality now.

I, the parent, did not ask for this exercise. She started it by herself. She did not ask me what to write. She’s been surprising me all over again.

I know my daughter but to realize she knows herself is priceless.

How did she achieve this? By exposing her to a variety of experiences. By allowing her to fail. By not allowing autism and its challenges to dictate what will occur at home or in the community.

In less than 2 hrs, she wrote 17 facts about herself.

Some highlights:

  1.  Thomais was born in Greece.
  2. Thomais is a loud farter plus a belcher.
  3. Thomais can weigh up to 82, 83 or 84 pounds.
  4. Thomais loves animals of all kind.
  5. Thomais always wants to go to Scotland to see the Loch Ness Monster.
  6. Thomais is a good dancer and twerker.
  7. Thomais loves to sing her favorite songs – Better when I’m dancing; Roar; Stitches; Nothing holding me back; Poker Face; When I’m gone; I can see a rainbow; Bad romance; Diamonds; Waka-Waka
  8. Thomais is the best prankster.
  9. Thomais loves to watch videos about the three Cunard Queens – Queen  Mary 2, Queen Victoria and Queen Elizabeth (all cruise ships)
  10. Thomais loves to talk about the R.M.S. Titanic over and over (headaching to everyone)
  11. Thomais loves to eat green beans, broccoli, banana, apple, chicken with  bone, white rice, macaroni, ice cream, whip cream – with chocolate chips, chocolate chips, M&M’s.
  12. Thomais hates to eat burger, egg plant, zucchini, meat balls.
  13. Thomais met Dakota Fakota Fanning in NYC.
  14. Thomais is Shawn Mendes #1 FAN!!
  15. Thomais sometimes says ain’t when she’s singing.
  16. Thomais mom is sometimes so BOSSY!
  17. Thomais hates homework.
  18. Thomais really misses her dad.
  19. Thomais has lots of BFF’s — E, G, L, M and K
  20. Thomais dad is funny, fund and kind. Her mom is over protective, bossy and sometimes nice.

 

She’s 10. Presently, the world is all about her.

I keep reminding her others must be included.

This is a great activity for any kid.

It is an opportunity to keep the conversation going and avoid surprises.

More soon. Enjoy!

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When I was 15! – LinkedIN

LinkedIn celebrated its 15th anniversary… Congrats…

They requested people write what they dreamed, thought about when they were 15.

I shared these thoughts!

 

#LinkedIn

#WhenIWas15

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The Ambassador of Autism Tourism!

My daughter wants to travel. She wishes to discover the world. She says all the time, you went to China and you did not take me… not fair!!

We have read posts about families raising children, teens and adults on the autism spectrum who have succeeded planning trips. Yes, even with autism on board they were capable of enjoying a vacation. Above all, not allowing the diagnosis control the dynamics.

Here is our effort. We must share what we are learning and enjoying.

I am aware not everyone can do what we do, how we do it. The purpose here is not to compare since we have something to learn from all of you, I firmly believe that. The purpose is to share how we accept the awesome and the challenges of our day to day. Above all, how we seek quality of life.

Enjoy the latest posts…

Ambassador of Autism Tourism

Real Practices, Solutions

Practical Advice – What works for us

NYC Here we come!

Conquering NYC and Autism

Visiting the American Museum of Natural History

How Autism Friendly can NYC be?

Emily = Dakota = NYC = UN

Is Tampa an autism friendly city?

 

What are the future. dream locations she wishes to visit? Read this:  Art Inspires the Ambassador

She loves to draw. She is very original. She has not been to these places. She may have seen pictures of these places. It is her interpretation.

Questions, suggestions? Email:  autismhappykingdom@gmail.com

 

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I HAVE AUTISM! ACCEPT ME…

Thomais has autism. She can now speak – after a massive regression in Dec. 2010.

As time passes, her prowess with language and body expressions is obvious and beyond enjoyable. At the same time, her message is clear, concise and beyond real.

I HAVE AUTISM… ACCEPT ME!

Thomais wants to be acknowledged, accepted, understood, respected – she wants to belong.#Autism can present challenges. The rest of the world needs to hear from those living it, to better understand what it can be about.Find out more about Thomais here: www.autismhappykingdom.com#twominutewonderclip

Posted by Autism: The Happy Kingdom on Thursday, April 12, 2018

 

She wants to be acknowledged, accepted, understood, respected – she wants to belong. #Autism can present challenges. The rest of the world needs to hear from those living it, to better understand what it can be about.

This was Thomais’ reality in 2012… behavior crisis that could last 2 hours… https://www.youtube.com/watch?v=vfcRx… It is no longer the case… Now we celebrate her!

Find out more about Thomais here: www.autismhappykingdom.com

#twominutewonderclip

NOTE: I am aware not every family can have their child communicate the way Thomais does. We have been there. We survived the not knowing or understanding. May Thomais’s words help those around you understand what your child/teen/adult could be experiencing.

 

 

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Girl with autism – now verbal – shares abuse in school

My daughter Thomais can now speak — 6 years ago she could not!

This instance is a classic. Why? Because assistants and a teacher treated her without kindness and respect two years ago. And for the past 6 months she’s capable of expressing her memories in vivid detail.
Every month she goes through OCD and a PTSD episode and she repeats the same details over and over. She cries and asks why did this happen to her.

As a parent I say: ENOUGH IS ENOUGH!
Another parent states: “every single day there is more lack of empathy. I am totally disgusted”

A combination of factors allow this abuse to take place and our children pay for it.
My main message: existing training prior to being hired is not effective, it cannot be Academia based. It has to be training led by parents.

But in order to get approval for any kind of training of teachers, politics have to be involved.
They will be hearing from us soon!

This is her video from 2 years ago – as she revealed her experience.

Great research here:

Sources of Information—Who Are the Best Reporters?
Due to their core deficits in communication, emotional
understanding, and expression, children with ASD are often
poor reporters of their own psychological symptoms
and under-report problems on symptom rating scales
(Mazefsky et al. 2011; White et al. 2012). Clinicians have
come to rely on the reports of parents or other observers…